Age-Old Problem, Perpetually Absent Solution: Fitting Special Education to Students' Needs
Miguel Landeros is a lanky, well-spoken 12-year-old about to begin seventh grade in Stafford County. He is severely learning disabled, with reading, writing and math skill levels at least two years below his peers, and needs special teaching, according to a licensed clinical psychologist at the Kennedy Krieger Institute in Baltimore and other specialists. Last February, Stafford officials refused to accept that evaluation and left him in regular classes. He performed poorly, failing all core subjects. Recently, they promised to give him more specialized services, but not the ones the experts who examined him say he needs.
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I admit that education writers in general, and I in particular, write very little about learning disabilities and the many failures of federally mandated public school programs to help students who have them. I often say the cases are so complicated I have difficulty translating them into everyday language, and even then readers struggle to understand.
But that is not the whole truth. I also avoid special education stories because they all seem the same, one tale after another of frustrated parents and ill-equipped educators trying but failing to find common ground, calling in lawyers while the children sit in class, bored and confused.
That is not a good reason for ignoring what is probably the most aggravating part of our public school system, at least for the millions of parents who have to deal with it. Many prefer to fight these battles in private. But occasionally, someone like Kelli Castellino, Miguel's mother, shames me by e-mailing a thick file of her correspondence and asking me to tell the story. I will give it a try, without much hope anything will come of it.
Castellino says Miguel attended first through fifth grades at two Howard County elementary schools, Bryant Woods and Phelps Luck. He struggled to learn to read, she says, but the schools did not test him for learning disabilities until she made a formal request in fifth grade. She was told he did not qualify for an Individualized Education Plan, which under one federal law would require special teaching to address his disabilities. He received the lesser option, called a 504 plan, which under another federal law guarantees him special accommodations in a regular classroom setting, such as more time to complete tests.
Castellino, like other parents of children with learning disabilities, had fallen into a jabberwocky world of legal, educational and psychological jargon that makes money for lawyers but leaves parents with headaches and empty bank accounts. Different evaluators might have different views of a child's needs. The laws are vague, although a recent U.S. Supreme Court decision gave parents more sway in such cases. School district evaluators -- good people placed in impossible situations -- might choose the option that costs the least money in hopes that will be enough. They know their budgets may not support much else.
When Castellino moved to Stafford last year and enrolled Miguel at Shirley C. Heim Middle School, she told school administrators that she thought Howard County had overlooked severe problems (a Howard spokeswoman said "not every child with a disability qualifies for an IEP") and asked that Miguel be tested again. School officials told her that because the Howard tests had been so recent, they wanted to wait and see.
In November, Castellino had Kennedy Krieger evaluate Miguel. That report identified these disabilities, with numbers referring to entries in the Diagnostic and Statistical Manual of Mental Disorders: "Reading Disorder (315.00); Mathematics Disorder (315.1) and Disorder of Written Expression, 315.2 (Specific Learning Disability); Attention Deficit Hyperactivity Disorder-Combined Type, by history, (Other Health Impaired)." Still, the school kept Miguel in regular classes the rest of the school year. Stafford agreed recently to offer him special services, but in a class with mentally disabled or emotionally disturbed children, not the placement his private evaluators recommended.
Castellino, an office manager, says her insurance has covered the nearly $10,000 spent on neuropsychological, speech and language, occupational therapy, hearing, vision and assistive technology tests by seven different evaluators, including the $2,000 Kennedy Krieger bill. But she anticipates tapping her own funds for future legal and private school expenses. "I am selling my car and will be riding my bike to work, selling anything I can in my house to come up with the money to place my child" where he should be, she says.
I asked Stafford for a response. A spokeswoman said the school system provides "an outstanding education for all of our special-needs students," but she would not comment on any individual student "even if the parent signs a waiver of privacy rights."
Why do you suppose that is? Castellino is following the usual course, making plans to seek a court order for a better placement in a private school. The school district has lawyers, too. They do not want their spokeswoman to say anything that might weaken their case.
Here we go again. Is there an alternative, some innovative way to help kids like Miguel? Special education vouchers? Charter schools for the learning disabled? The old way is rutted, bumpy and slow. It is not taking us very far. We need something new.
E-mail: mathewsj@washpost.com
By
Jay Mathews
| August 17, 2009; 12:21 PM ET
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Posted by: margaret6 | August 17, 2009 4:28 PM | Report abuse
At least parents of disabled kids have some amount of legal protection. Children who are highly gifted are similarly ill-served by government-run schools but in most cases are SOL.
I don't know what the solution is for educating kids who are far out of the mainstream (either low or high). Something that would help IMHO would be to stop grouping kids together by age but rather by where they are in the curriculum.
Posted by: CrimsonWife | August 17, 2009 5:12 PM | Report abuse
As someone who has dealt with these issues from all sides—in my family, as a Hearing Officer, as Coordinator of Graduate programs in Reading Disabilities and Special Education, as an expert witness, as a journal editor, and as a consultant to schools and families—I’m convinced that for children with learning disabilities it’s a mistake to argue for particular learning methods. Instead, parents need to do five things: (1) Get an set of expert evaluations that include easily measureable goals and objectives; this is key to getting services and making schools accountable; (2) Observe in their child’s class and schedule monthly meeting with their child’s teachers and IEP Team; the purpose of the meetings is to look at data that assesses progress on the goals and objectives, the way that physicians look at temperature and blood pressure; (3) Link up with an advocate who focuses on solving problems rather than attacking schools; in many areas, such services are available for free; (4) study their state’s special education codes and study quality resources to learn all that they can about their child’s disabilities; and (5) stop thinking that private is always better than public; some public schools are great, some specialized private school terrible, and vice versa. What I’m recommending to parents is hard work, work that will not guarantee success; it will, however, increase the odds that their child will overcome difficulties in reading, writing, mathematics, and related school subjects.
Howard Margolis, Ed.D.
Posted by: hm08043 | August 17, 2009 5:33 PM | Report abuse
With all due respect Dr. Margolis, the tasks you have assigned for parents, particularly numbers 1,2, and 4, are already legally required by IDEA to be carried out by SCHOOLS. Evaluating, planning, observing and modifying the plan as needed to meet the goals is the definition of a free appropriate public education. It is a dynamic process that is the responsibility of public schools, with input and consent from parents.
When a parent expresses a desire for a particular methodology to be used in educating their child, are you suggesting that they haven't already done the hard work that is needed to make sense of their child's needs and find ways to teach him that are likely to be of benefit?
Educators love to tell parents to "Leave it to us. We're the professionals." If school personnel paid any attention to the outside evaluators that we already hire, came to IEP meetings without having already written it all out ahead of time without our input, allowed us to observe the classroom, and actually told us parents exactly what it is that they are doing differently for my child that is "special" I would feel that a collaborative effort was being made. I'm more than willing to let them do their jobs, if they only would!
Posted by: Notyourmomma | August 19, 2009 10:13 PM | Report abuse
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There are certainly no easy answers in a case like this, but he was tested in Howard County and didn't qualify for an IEP. That would indicate that whatever the learning problem is, it's not something that qualifies him for co-teaching and other resources available through special ed.
But, the bottom line is that something is going to have to be done to address cases like this on-site, because there are only so many tax dollars available to pay to send kids to private placements on the government's dime. And every dollar used for that purpose is a dollar taken away from all the other kids in a school system.